It's apparently inevitable. You get some weird preliminary diagnosis or heck, just find out what you are being tested for, and you go to google and start looking up every buzz word the dr threw out at you to make your own diagnosis. This is inevitably incorrect, especially as all you hear are worst case scenarios, time wasting, and paranoia inducing. I've always, ALWAYS, told people whenever they are undergoing treatment or tests for something to back away from the google search engine.
So why in the name of all that is holy is it that the second I get a notice saying that Nico's lab results are available do I go check them out and then start googling over one I can't even be sure is abnormal or not because the format they gave the result in does not conform to the format the results range is in anywhere. Ugh, ugh, ugh!!!!
I'm off to go bang my head into a wall for doing the dumbest thing ever (especially since I KNEW it was the dumbest thing ever when I did it) and then pray that the Dr. adds notes to the records or calls me soon, definitely much sooner than our follow-up phone call on April 15. Not sure my few threads of sanity can wait that long to know what is going on with my baby.
(ETA: You all knew I couldn't just leave this alone so I did some more digging cause I'm that moronic and talked to a few friends that work in labs, others who have had thyroid problems, and compared them to Matthew's results from Sept and they do look normal so I'm breathing easier. It makes a lot of sense for both of them to have normal results and respond well to the melatonin and basically be dealing with the same issues. I do almost wonder tho if there isn't something environmental since it's affecting both of them at the same time when Matthew was an awesome sleeper as a baby. Hmmmm....something else to ponder)
In the good news tho, he's been responding well to the melatonin, going to sleep about 30-40min after being dosed the past two nights. Hopefully that will continue and we'll all get a bit more sleep around here.
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Insight from the Dalai Lama:
When we die nothing can be taken with us but the seeds of our life's work and our spiritual knowledge.
Sate of my sink: In need of work. I did a load of dishes yesterday but I still have a bit to do and the dishwasher didn't finish running until after I went to bed.
Friday, March 14, 2008
Thursday, March 13, 2008
Catch me if you can!
Ok, this week has been insane with all the Dr. visits anyway but my friend just called and then asked if I would be around later and I realized exactly how crazy today is going to be. Just for fun (and so you all know why those nice young men in their clean white coats are circling my house LOL) I thought I'd list my afternoon here. This morning has already been filled with several phone calls dealing with trying to finish over all the banking issues, balancing the checkbook, teaching 2 lessons of math, grabbing a shower, and getting packages ready to ship for ebay sales.
So we leave at noon (yes, in just a few minutes) to:
*Drop off a necklace at someone's house
*Ship ebay packages at the post office
*Get lunch at In-n-Out
*Drop odds off at bowling with our CAVA teacher
*Take Nico for blood draw
*Stop at Babies R Us for diaper genie refills and childproof door locks
*Pick up odds from bowling
*Stop at bank and let the kids make their monthly deposits
*Go to Costco for monthly shopping there
*Come home, put away Costco groceries, cook dinner, collapse into a heap
Sounds like fun, no?
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Insight from the Dalai Lama:
Before we seek refuge from suffering, we must first deepen our understanding of its nature and causes. Doing so intensifies our wish to find protection from suffering. Such a mental process, which incorporates study and contemplation, must also be applied to develop our appreciation of the Buddha's qualities.
State of my sink: Hoping to get the dishes done before I leave so it will be nice and shiny again
So we leave at noon (yes, in just a few minutes) to:
*Drop off a necklace at someone's house
*Ship ebay packages at the post office
*Get lunch at In-n-Out
*Drop odds off at bowling with our CAVA teacher
*Take Nico for blood draw
*Stop at Babies R Us for diaper genie refills and childproof door locks
*Pick up odds from bowling
*Stop at bank and let the kids make their monthly deposits
*Go to Costco for monthly shopping there
*Come home, put away Costco groceries, cook dinner, collapse into a heap
Sounds like fun, no?
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
Before we seek refuge from suffering, we must first deepen our understanding of its nature and causes. Doing so intensifies our wish to find protection from suffering. Such a mental process, which incorporates study and contemplation, must also be applied to develop our appreciation of the Buddha's qualities.
State of my sink: Hoping to get the dishes done before I leave so it will be nice and shiny again
WIN A SAKS DAKOTA HOBO BAG! WOW!
GO HERE to enter the contest to win a SAK HOBO BAGfrom 5 MINUTES FOR MOM BLOG
HERE is the BAG
here are the details
So leave a comment here and link back to this post from your blog for a chance to win this The SAK Dakota Hobo handbag. (We will announce the winner on March 15th. This contest is open only to US shipping addresses.)
It is made with luxurious Italian, crinkle-glazed leather and has a braided leather strap, tassels and outside zippered pocket. I also love the gorgeous, wine-colored, satin lining.
But even if you don’t win one here - the other wonderful thing about The SAK handbags is that they are reasonably priced. The Dakota Hobo is $159.99 and you can find even more affordable designs on their site too. Don’t forget to check the sale items - you can definitely get some very great deals on fabulous there!
And when your bag arrives at your door, throw it over your shoulder, put on some lipstick and head outside (even if it is just to drop your kids off at school.) You look fabulous - and you need to show it off!
Wednesday, March 12, 2008
ASD Clinic update
Boy, I think Nico isn't too happy with all this stuff either as he chose to stay up til midnight last night and then woke at 6:30a this morning. I had a bad feeling this was not going to be beneficial to any sort of testing they might want to do with him. We got out about 20min later than I had wanted to thanks to Nico's early rising but managed to only be a couple of minutes late getting to the appointment. Nico fell asleep in the car about the time I was coming off the freeway and I allowed myself to hope that he would sleep in my arms for an hour while I talked with the Drs before waking himself up and showing them the true mischief maker we know and love. Alas that was not meant to be. :( He woke up immediately upon our arrival and I could tell he was not feeling wonderfully. I continued to hope for the best (in this case a modicum of cooperation and just a true viewing of what he is normally alike) but he was cranky and out of sorts. He played quietly for a little bit (yeah, I know, quietly??? I told you he was tired) and played a little with the Drs but not much. There was not much in the way of laughter of smiles or the silly games he loves to play with us. Of course, this brought up all the concerns because he wasn't making much eye contact or smiling responsively. Anyone who's met him knows that isn't his usual personality. After an hour, he had decided that he had really had enough of being there (okay, after about 30min he had had enough but I managed to sort of keep him occupied for a little longer) and it was agreed that they weren't really going to get what they needed so we left and agreed to do a phone interview later in the day. *sigh* I really had a bad feeling about trying to do something like this so early in the day with him and I'm sorry I ended up being right.
I was talking to Mark and my mom afterwards a bit and we do seem to have a working, plausible theory tho. The only experts who ever seen any ASD signs are the ones in SJ. None of the ones within about a 30min drive of us have had any thoughts along those lines, even when I've mentioned the concerns the other dr raised. Now Matthew and I both suffer from motion sickness and as we were all talking today, we realized that Nico is always quieter and more clingy after a longer cardrive (defined as an hour or more), much more subdued, not as talkative or smily, and it usually takes him an hour or two to warm back up. We hadn't questioned it much figuring a) it was kind of nice to have a quiet moment or two and b) he was just unsure of new places but now we are thinking he may suffer from motion sickness as well and that's what the drs down there are seeing. Not his usual self but one that is feeling ill from the long car ride (in addition to being sick at the last appointment). It's interesting and it really feels right to me so we are going to go with that and I'm going to work on getting any follow-up appointments with a developmental pedi transferred to SF to make sure. They are also supposed to be opening a new ASD clinic up there as well so if we do feel the need to do testing in the future, we will go to that one to again try and rule out any possible influences from the long car ride.
I brought this theory up during the phone interview and the Dr did seem to think it was at least plausible. We spoke for 2hrs and I think I was able to paint the picture of the real Nico clearly enough, at least I hope so. I'm still feeling, as I have all along, that this is not the right path to be taking for him at this juncture so I'm not going to pursue anything further with the ADOS or anything at this point. Between my motion sickness theory and my gut feelings it really feels like we would just be wasting everyone's time. If he truly is on the spectrum, something further will present itself at some point to raise someone's eyebrows and we will go from there but since at this point, none of the other specialists have shown any concern, I'm more than content to let it lie.
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Insight from the Dalai Lama:
If objects and people evoke attachment in us, we do not understand the true nature of phenomena. We can only become detached by realizing the true nature of things.
State of my sink: Shiny! (Thank you Mark!)
I was talking to Mark and my mom afterwards a bit and we do seem to have a working, plausible theory tho. The only experts who ever seen any ASD signs are the ones in SJ. None of the ones within about a 30min drive of us have had any thoughts along those lines, even when I've mentioned the concerns the other dr raised. Now Matthew and I both suffer from motion sickness and as we were all talking today, we realized that Nico is always quieter and more clingy after a longer cardrive (defined as an hour or more), much more subdued, not as talkative or smily, and it usually takes him an hour or two to warm back up. We hadn't questioned it much figuring a) it was kind of nice to have a quiet moment or two and b) he was just unsure of new places but now we are thinking he may suffer from motion sickness as well and that's what the drs down there are seeing. Not his usual self but one that is feeling ill from the long car ride (in addition to being sick at the last appointment). It's interesting and it really feels right to me so we are going to go with that and I'm going to work on getting any follow-up appointments with a developmental pedi transferred to SF to make sure. They are also supposed to be opening a new ASD clinic up there as well so if we do feel the need to do testing in the future, we will go to that one to again try and rule out any possible influences from the long car ride.
I brought this theory up during the phone interview and the Dr did seem to think it was at least plausible. We spoke for 2hrs and I think I was able to paint the picture of the real Nico clearly enough, at least I hope so. I'm still feeling, as I have all along, that this is not the right path to be taking for him at this juncture so I'm not going to pursue anything further with the ADOS or anything at this point. Between my motion sickness theory and my gut feelings it really feels like we would just be wasting everyone's time. If he truly is on the spectrum, something further will present itself at some point to raise someone's eyebrows and we will go from there but since at this point, none of the other specialists have shown any concern, I'm more than content to let it lie.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
If objects and people evoke attachment in us, we do not understand the true nature of phenomena. We can only become detached by realizing the true nature of things.
State of my sink: Shiny! (Thank you Mark!)
52:15 The Cat Who Turned On and Off by Lilian Jackson Braun
The third book in the series. Nice to see some further character development on the part of the main characters but it wasn't much. Still, I am enjoying the light, easy nature of the books. It was just the right speed for my poor sleep-befuddled head today.
Tuesday, March 11, 2008
Nico's Sleep Update - Pediatric Neurologist/Sleep Specialist
It was a good appointment. He asked good questions, went over my concerns, stated what his concerns where and a course of action. He is most concerned about how long it can take Nico to fall asleep and his quality of sleep, not so much about how little he sleeps. I'm to take him in to have his thyroid and iron stores checked (boy, that's gonna be fun) and start him on a 1/4mg of melatonin at bedtime. I can go up to 1mg of melatonin at bedtime and give another 1/4mg if he wakes and thinks its party time in the middle of the night. We have a phone conference to go over the results of the labs and how he is responding to the melatonin in a month. If things aren't showing signs of improvement, he'll be referred for an overnight sleep study (with me, of course) to see if they can find anything with that. Considering how well he took to being weighed, measured, and head measurement today...Let's just say I'm really hoping to avoid that.
He has also been referred for a hearing test because of the speech delay just to rule everything out there but he doesn't really think there's a problem with it but better safe than sorry. He also said "I'm not sure what Dr Cohen was seeing that caused him to think Nico was autistic. In my humble opinion, the only sign is the speech delay and that's not enough to label him." I'm still keeping the appointment tomorrow just so I look like a good little mommy following up on everything but you'll hear about me on the news if they try to tell me he is. I know he's not an angel and he may have his issues but I'd believe ADHD before I'd believe autistic and I don't think he's ADHD either but I'd still buy that first.
So there's the news there. After the appointment, we ran some errands including getting Jon his new DS. I'm still awaiting payment on one of the auctions but it was on sale now and there was enough interest in the auction that if I don't get paid, I should be able to either second-chance offer it or relist and get approximately the same price so I'm not too concerned. I also took the boys to see the Easter Bunny for the first time ever (horrible mom, aren't I?). It's too funny because Nico was all happy to sit on Santa's lap last year which I was amazed by but he wanted nothing to do with the humongous bunny. ROTFL He did warm up a little towards the end and was playing a little game with him and the eggs but still keeping a little distance. So needless to say, I ended up in the picture holding Nico behind the couch to get him in. I knew there was no way I was going to get out being in a holiday pic with Nico, it was just too good to be true. LOL I also ended up in the Disney store while we were at the mall. Bad, bad idea. You'd think I'd know better especially given Nico's obsession with Cars. I ended up getting him his own placemat and some new silverware and his own beachtowel (all Cars of course). I also got some new cars Cars for my purse to help keep him amused when we are restaurants and such. And, well, ok, I admit it, I couldn't pass up the $5 Thumper.
Thank goodness Mark is working late so I have time to hide everything. 
Now onto the ASD evaluation hell tomorrow. Have I complained enough about it starting at 9a in an office that is over an hour away without traffic or allowing drop-off of the big boys???? So yeah, I'm rolling the big ones out of bed at 6:45a (thankfully their normal wake time) and getting them dressed and in the car. Then I'm just plopping Nico in the carseat and going to BK and Starbucks for breakfast and heading out. Should be a fun time.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
When a problem first arises, try to remain humble and maintain a sincere attitude, and be concerned that the outcome is fair.
State of my sink: Shiny!!!! (hard to mess it when we haven't been home all day)
He has also been referred for a hearing test because of the speech delay just to rule everything out there but he doesn't really think there's a problem with it but better safe than sorry. He also said "I'm not sure what Dr Cohen was seeing that caused him to think Nico was autistic. In my humble opinion, the only sign is the speech delay and that's not enough to label him." I'm still keeping the appointment tomorrow just so I look like a good little mommy following up on everything but you'll hear about me on the news if they try to tell me he is. I know he's not an angel and he may have his issues but I'd believe ADHD before I'd believe autistic and I don't think he's ADHD either but I'd still buy that first.
So there's the news there. After the appointment, we ran some errands including getting Jon his new DS. I'm still awaiting payment on one of the auctions but it was on sale now and there was enough interest in the auction that if I don't get paid, I should be able to either second-chance offer it or relist and get approximately the same price so I'm not too concerned. I also took the boys to see the Easter Bunny for the first time ever (horrible mom, aren't I?). It's too funny because Nico was all happy to sit on Santa's lap last year which I was amazed by but he wanted nothing to do with the humongous bunny. ROTFL He did warm up a little towards the end and was playing a little game with him and the eggs but still keeping a little distance. So needless to say, I ended up in the picture holding Nico behind the couch to get him in. I knew there was no way I was going to get out being in a holiday pic with Nico, it was just too good to be true. LOL I also ended up in the Disney store while we were at the mall. Bad, bad idea. You'd think I'd know better especially given Nico's obsession with Cars. I ended up getting him his own placemat and some new silverware and his own beachtowel (all Cars of course). I also got some new cars Cars for my purse to help keep him amused when we are restaurants and such. And, well, ok, I admit it, I couldn't pass up the $5 Thumper.
Thank goodness Mark is working late so I have time to hide everything. Now onto the ASD evaluation hell tomorrow. Have I complained enough about it starting at 9a in an office that is over an hour away without traffic or allowing drop-off of the big boys???? So yeah, I'm rolling the big ones out of bed at 6:45a (thankfully their normal wake time) and getting them dressed and in the car. Then I'm just plopping Nico in the carseat and going to BK and Starbucks for breakfast and heading out. Should be a fun time.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
When a problem first arises, try to remain humble and maintain a sincere attitude, and be concerned that the outcome is fair.
State of my sink: Shiny!!!! (hard to mess it when we haven't been home all day)
Monday, March 10, 2008
The punchline still needs work...
But it was cute anyway. The big boys were all telling a bunch of knockknock jokes at dinner tonight and all of sudden Nico starts saying "knoch knoch" over and over again and laughing hysterically. And if you asked him who's there, he'd point to the door. Funny kid!
In other news, Mark's company is continuing to have problems with one of their big clients. There is some bug that no one has been able to figure out where the problem is. They still aren't 100% sure it's even in their code but the client is 48hrs from pulling the deal. Please keep them in your thoughts and prayers to get this figured out as losing this deal could be the final nail in the company's coffin.
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Insight from the Dalai Lama:
The mind must be developed by you alone. There is no way for others to do the work and for you to reap the results. Reading someone else's blueprint of mental progress will not transfer its realizations to you. You have to develop them yourself.
State of my sink: Just the dinner dishes right now. Chris is unloading the dishwasher and I'm going to go bathe the evens and then I'll be shining it up proper.
In other news, Mark's company is continuing to have problems with one of their big clients. There is some bug that no one has been able to figure out where the problem is. They still aren't 100% sure it's even in their code but the client is 48hrs from pulling the deal. Please keep them in your thoughts and prayers to get this figured out as losing this deal could be the final nail in the company's coffin.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
The mind must be developed by you alone. There is no way for others to do the work and for you to reap the results. Reading someone else's blueprint of mental progress will not transfer its realizations to you. You have to develop them yourself.
State of my sink: Just the dinner dishes right now. Chris is unloading the dishwasher and I'm going to go bathe the evens and then I'll be shining it up proper.
Saturday, March 08, 2008
Made it 3 weeks
Well, technically it might have been even longer since I bought books from the local bookstore but I think it was about that long since I bought the Philipa Gregory books from Costco. I tried to see if I could go a while before buying more since I know I have enough to last me a couple of years, but...well...I'm weak willed when it comes to books. Sue me.
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Insight from the Dalai Lama:
The female is the source of genuine human compassion.
State of my sink: Well, um, yeah, er.....
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
The female is the source of genuine human compassion.
State of my sink: Well, um, yeah, er.....
Friday, March 07, 2008
Watch out for exploding signs!
We've had an explosion of new signs from Nico this past week. Still not much in actual words but he is now trying to sign milk, apple, mommy, play, and cheese. It's so funny because if I ask him to say something, he remains silent but if I show him the sign, he'll imitate that. He is definitely determined to do things in his own way at his own time.
Oh, and while I wasn't able to get a pic of this it would probably fall under a "What posses him to do these things?" He wandered into the kitchen to grab a snack but instead decided to pour oil all over the kitchen floor. Go figure that his feet then became covered in oil and on a linoleum floor, he went sliding and down. I heard him get upset and went to investigate to find the mess he had made. All I can say is that thankfully, it was maybe a cup of oil not an entire container and it was the cheap Mazola not the expensive olive oil. Ahhh....the little things in life to be thankful for.
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Insight from the Dalai Lama:
Whatever forms of meditation you practice, the most important point is to apply mindfulness continuously, and make a sustained effort. It is unrealistic to expect results from meditation within a short period of time. What is required is continuous sustained effort.
State of my sink: Shiny!!!
Oh, and while I wasn't able to get a pic of this it would probably fall under a "What posses him to do these things?" He wandered into the kitchen to grab a snack but instead decided to pour oil all over the kitchen floor. Go figure that his feet then became covered in oil and on a linoleum floor, he went sliding and down. I heard him get upset and went to investigate to find the mess he had made. All I can say is that thankfully, it was maybe a cup of oil not an entire container and it was the cheap Mazola not the expensive olive oil. Ahhh....the little things in life to be thankful for.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
Whatever forms of meditation you practice, the most important point is to apply mindfulness continuously, and make a sustained effort. It is unrealistic to expect results from meditation within a short period of time. What is required is continuous sustained effort.
State of my sink: Shiny!!!
Please join our prayers
As many of you may know, I have made many online friends in the past almost 8yrs now. One group of women I met online when pregnant with Nico. Recently one of these women gave birth to her second son, Jonathan (great name). Little Jonathan is 3wks old and still has not come home from the hospital and can use all the prayers and positive/healing energy people can send his way. I'm copying and pasting from a mutual friend's blog the whole story of Jen and Jonathan. There is a link at the bottom to PayPal money to our friend Jenny who is organizing GCs for meals, gas cards, and other things to help out during this difficult time. Please read the message, pray, and hug your babies tight.
Begin Message:
My friend Jen here in town, who has a son Max's age, Jacob, had a baby, named Jonathan on on February 12. He was born full-term and healthy, but after his first night after his birth, his blood sugar dropped and he has been in the NICU ever since. He was transferred to Children's Hospital here to work with specialists as they figured out what was wrong, something with his liver. They finally got a diagnosis, Neonatal Hemochromatosis.
Some info:
"Neonatal Hemochromatosis (NH) is a rare condition which occurs while the baby is developing in the mother's womb. Toxic levels of iron accumulate in the liver as well as other places in the unborn baby's body. NH looks very much like another condition known as "Hereditary Hemochromatosis" (HH) also known as iron overload disease which is genetic (see www.americanhs.org for more information on Hereditary Hemochromatosis) NH is not considered to be "genetic".
Here is the website for NH:
http://www.neonatalhemochromatosis.org/
I just feel terrible for them. We know what it is like to get a diagnosis that can be fatal to your baby. I don't want anyone to go through what we went through, and yet, Jen and her family are. They are doing some transfusions and some drug combinations to see if that will help repair his liver, and if not, he may need a liver transplant. Jen is a elem school teacher in the same district as Matt and we have gotten together often (even though we met online) to play with our babies - she was a great support when we were fighting TTTS.
So, we want to help her and her family. We are going to talk to them and see what they need the most, but we may make some meals to be frozen to take to them, help them with gas cards to get to and from the hospital, or just give them money to help with medical expenses, daycare for Jacob or anything else that they need during this time.
So, if you'd like to help them, you can make a donation to our paypal account and we will make sure that it gets put into something useful for them. In any case, please send your positive thoughts to them that their little boy with get through this and come home soon.
Our paypal account: colofisch@comcast.net
Begin Message:
My friend Jen here in town, who has a son Max's age, Jacob, had a baby, named Jonathan on on February 12. He was born full-term and healthy, but after his first night after his birth, his blood sugar dropped and he has been in the NICU ever since. He was transferred to Children's Hospital here to work with specialists as they figured out what was wrong, something with his liver. They finally got a diagnosis, Neonatal Hemochromatosis.
Some info:
"Neonatal Hemochromatosis (NH) is a rare condition which occurs while the baby is developing in the mother's womb. Toxic levels of iron accumulate in the liver as well as other places in the unborn baby's body. NH looks very much like another condition known as "Hereditary Hemochromatosis" (HH) also known as iron overload disease which is genetic (see www.americanhs.org for more information on Hereditary Hemochromatosis) NH is not considered to be "genetic".
Here is the website for NH:
http://www.neonatalhemochromatosis.org/
I just feel terrible for them. We know what it is like to get a diagnosis that can be fatal to your baby. I don't want anyone to go through what we went through, and yet, Jen and her family are. They are doing some transfusions and some drug combinations to see if that will help repair his liver, and if not, he may need a liver transplant. Jen is a elem school teacher in the same district as Matt and we have gotten together often (even though we met online) to play with our babies - she was a great support when we were fighting TTTS.
So, we want to help her and her family. We are going to talk to them and see what they need the most, but we may make some meals to be frozen to take to them, help them with gas cards to get to and from the hospital, or just give them money to help with medical expenses, daycare for Jacob or anything else that they need during this time.
So, if you'd like to help them, you can make a donation to our paypal account and we will make sure that it gets put into something useful for them. In any case, please send your positive thoughts to them that their little boy with get through this and come home soon.
Our paypal account: colofisch@comcast.net
Ringtones abound
Well, since the boys now have new cool cellphones that accept good ringtones, I'm sure it comes as no big shock that the major decision was "What is my ringtone going to be???" We told the boys they can buy 2 ringtones a month using their own money or green discs so of course, they went shopping today. LOL
So we know have Christopher's phone with Mr. Brightside and Somebody Told Me by the Killers and Matthew's phone with We are the Pirates Who Don't Do Anything by the VeggieTales (coincidently the same song I have on my phone for him LOL) and One by Metallica.
Of course, listening to One prompted Nico to go ballistic if it wasn't playing constantly so I had to pull out the CD for him to headbang to. Yep, that's our kid. *rolling eyes* Not like I could expect anything else out of the child that screams for Guitar Hero constantly. Speaking of which, we got the new wireless controllers in for that today. I'm sure there is going to be a lot of testing them out this weekend.
So we know have Christopher's phone with Mr. Brightside and Somebody Told Me by the Killers and Matthew's phone with We are the Pirates Who Don't Do Anything by the VeggieTales (coincidently the same song I have on my phone for him LOL) and One by Metallica.
Of course, listening to One prompted Nico to go ballistic if it wasn't playing constantly so I had to pull out the CD for him to headbang to. Yep, that's our kid. *rolling eyes* Not like I could expect anything else out of the child that screams for Guitar Hero constantly. Speaking of which, we got the new wireless controllers in for that today. I'm sure there is going to be a lot of testing them out this weekend.
The Homeschool Court Case
Article on how the case can be interpreted:Full brief of the court case:
http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2008/03/07/MNJDVF0F1.DTL
http://www.courtinfo.ca.gov/opinions/documents/B192878.PDF
I've received several calls about this and how it affects us here. The answer to the question is we don't know. This was a ruling upholding a previous ruling from the 50s yet there is still homeschooling going on with no problems. We are part of a charter school but there is still a lot of question as to how that would protect us or if all charter schools using ISPs would be forced to close. There are still many appeals to be seen in this case so until we hear that either CAVA has closed or we are told otherwise, we will continue on as we have been going. I would be lying if I were to say that the implications of this case did not scare me. I do not wish to have my children be truant or give the law any reason to take my boys from me, but nor will I put them back in these public schools and the privates that I have seen are no better suited to them. Where would that leave us? I don't know. Honestly, I very seriously doubt that homeschooling will be totally outlawed as many are panicked about. I do understand that this whole case started because there were concerns of abuse or neglect of the children and the social workers wanted a better way to supervise their welfare, but children in public schools are still abused and very often it is not noticed or acted upon so I fail to see how this will solve all the problems. The vast majority of homeschoolers do so because they want a better education for their children, one which current public and private schools either cannot or will not provide. I was actually told yesterday during Jonathan's IEP that what we were doing was absolutely the best educational environment for him and I know for a fact that Christopher has grown tremendously since I brought him home so for me and mine, we will watch it closely but will proudly continue to school at home whether via charter or privately until I send my kids off to college or they send me to the loony bin.
If you'd like to help support this fight, please sign the petition below showing your support of a parent's right to homeschool:
http://www.hslda.org/Default.asp?bhcp=1
Thursday, March 06, 2008
So much going on today
I don't have time or energy to go into details on the major stuff, like the homeschool court decision, so I'll make separate posts on those tomorrow. I just wanted to hit on a couple of quick, fun things that happened today, mostly so I don't forget them later. LOL
*Matthew finally got his own cell phone. He's only been bugging me about having one for over a year now. I originally told him when he graduated 5th grade, then it was when he started college for kids (which is when Chris got his), and well....he got it today. LOL Mark and Chris both had their phones die on them and need replacing so since Mark was there dealing with that, he decided to grab Matthew a phone too and be done with it all.
*We have one small problem with the above...Matthew and Christopher now have identical phones. I've ordered phone covers for them (one in a red flame job, the other black with a blue dragon) but in order to tell them apart for now, the boys have personalized their wallpaper with penguins and Naruto respectively. I did make them pay for their covers tho and they will have to pay for ringtones either with cash or their green behavior discs.
*I have new phone envy.
*Apparently so does Jonathan.
*Got through game night without Mark tonight. I left about 8:30p when Jonathan started running through the restaurant with the high chairs (like he does every month *sigh*) and took the two littles home and had a friend drop the older two off later.
*Played 5 Little Monkeys Jumping on the Bed with Jon and Nico. It's the first time we've tried actually playing a game with Nico (since he's barely 2, go figure). No, he didn't move the pieces according to the rules (we gave him his own to play with) but by the end, he had figured out how to wait his turn, spin the spinner, and imitate the actions we were supposed to act out for the different squares. Afterwards, Jon started bugging me for a bath and saying "plllllleeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeaaaaaaaaaaaaaaaaaaaassssssssssseeeeeee!!!!!!!!!!" to which Nico added his voice of "peeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee". Yes, they got a bath and Jon even washed Nico's hair. Gotta love moments like those. Of course, this was after the two of them had managed to break the top of the toilet tank. No, I didn't ask because frankly, I don't want to know.
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Insight from the Dalai Lama:
To develop patience, you need someone who willfully hurts you. Such people give us real opportunities to practice tolerance. They test our inner strength in a way that even our guru cannot. Basically, patience protects us from being discouraged.
State of my sink: Shiny!!!!
*Matthew finally got his own cell phone. He's only been bugging me about having one for over a year now. I originally told him when he graduated 5th grade, then it was when he started college for kids (which is when Chris got his), and well....he got it today. LOL Mark and Chris both had their phones die on them and need replacing so since Mark was there dealing with that, he decided to grab Matthew a phone too and be done with it all.
*We have one small problem with the above...Matthew and Christopher now have identical phones. I've ordered phone covers for them (one in a red flame job, the other black with a blue dragon) but in order to tell them apart for now, the boys have personalized their wallpaper with penguins and Naruto respectively. I did make them pay for their covers tho and they will have to pay for ringtones either with cash or their green behavior discs.
*I have new phone envy.
*Apparently so does Jonathan.
*Got through game night without Mark tonight. I left about 8:30p when Jonathan started running through the restaurant with the high chairs (like he does every month *sigh*) and took the two littles home and had a friend drop the older two off later.
*Played 5 Little Monkeys Jumping on the Bed with Jon and Nico. It's the first time we've tried actually playing a game with Nico (since he's barely 2, go figure). No, he didn't move the pieces according to the rules (we gave him his own to play with) but by the end, he had figured out how to wait his turn, spin the spinner, and imitate the actions we were supposed to act out for the different squares. Afterwards, Jon started bugging me for a bath and saying "plllllleeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeaaaaaaaaaaaaaaaaaaaassssssssssseeeeeee!!!!!!!!!!" to which Nico added his voice of "peeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee". Yes, they got a bath and Jon even washed Nico's hair. Gotta love moments like those. Of course, this was after the two of them had managed to break the top of the toilet tank. No, I didn't ask because frankly, I don't want to know.
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
To develop patience, you need someone who willfully hurts you. Such people give us real opportunities to practice tolerance. They test our inner strength in a way that even our guru cannot. Basically, patience protects us from being discouraged.
State of my sink: Shiny!!!!
Ahhhh...summer school
I'll admit it, it's March and I was already dreaming about summer vacation. We always do a bit of school over the summer to keep the kids from going totally brain-dead but there's always been lots of play time and time for mommy to catch up on all the stuff that didn't get done around the house during the school year. So much for that idea this year.
I just got off Jonathan's IEP phone conference. No earth shattering revelations to report. He is making good, steady progress, is a joy to work with, and very smart but it's all still a work in progress. He still has problems with the intelligibility of his speech and his vestibular and bilateral OT issues. It was brought up by our special ed teacher about the idea of him being enrolled in summer school through CAVA so he could continue to receive services for an additional 6wks in the summer rather than having 2½mos with no services (cause at $800/mo that insurance won't cover, we can't foot that bill). Since I knew I would already be working with him on his phonics which we are very behind in due in large part to his speech problems and also because I know how much his speech regressed last summer even with me working with him on what the speech teacher had given us I agreed to enrolling him. I just hope that we can manage to keep summer school from causing burn-out for him or me. I was already considering basically a half-day approach for him over the summer so here's hoping that will be enough to appease the requirements and still leave us plenty of goof-off time. And of course, you know that field trips to Marine World are great educational opportunities to learn science (learning about animals), math skills (if a dolphin eats 50lbs of fish a day, how much do 3 dolphins eat a week), and reading (which way are the tigers).
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
We are now in twenty-first century...The world is also facing a lot of new problems, most of which are man made. The root cause of these mad made problems is the inability of human beings to control their agitated minds. How to control such a state of mind is taught by the various religions of this world.
Within oneself, within each single person, one finds many inconsistencies and contradictions. Sometimes the disparity between one's thoughts early and late in the day is so great that one spends all one's energy trying to figure out how it can be resolved. This can lead to headaches. So naturally, between two persons, between parents and children, betweens brothers and sisters, there are differences. Conflicts and disagreements are bound to happen. If so, then how do we deal with them? If we have confidence in our capacity for reconciliation then we will be able to deal with these situations.
I feel love and compassion are the moral fabric of world peace. Let me first define what I mean by compassion. When you have pity or compassion for a very poor person, you are showing sympathy because he or she is poor; your compassion is based on altruistic considerations. On the other hand love towards your wife, your husband, your children or a close friend is usually based on attachment. When your attachment changes, your kindness also changes; it may disappear. This is not true love. Real love is not based on attachment, but on altruism.
State of my sink: Ummmm....yeah, let's not go there.
I just got off Jonathan's IEP phone conference. No earth shattering revelations to report. He is making good, steady progress, is a joy to work with, and very smart but it's all still a work in progress. He still has problems with the intelligibility of his speech and his vestibular and bilateral OT issues. It was brought up by our special ed teacher about the idea of him being enrolled in summer school through CAVA so he could continue to receive services for an additional 6wks in the summer rather than having 2½mos with no services (cause at $800/mo that insurance won't cover, we can't foot that bill). Since I knew I would already be working with him on his phonics which we are very behind in due in large part to his speech problems and also because I know how much his speech regressed last summer even with me working with him on what the speech teacher had given us I agreed to enrolling him. I just hope that we can manage to keep summer school from causing burn-out for him or me. I was already considering basically a half-day approach for him over the summer so here's hoping that will be enough to appease the requirements and still leave us plenty of goof-off time. And of course, you know that field trips to Marine World are great educational opportunities to learn science (learning about animals), math skills (if a dolphin eats 50lbs of fish a day, how much do 3 dolphins eat a week), and reading (which way are the tigers).
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
We are now in twenty-first century...The world is also facing a lot of new problems, most of which are man made. The root cause of these mad made problems is the inability of human beings to control their agitated minds. How to control such a state of mind is taught by the various religions of this world.
Within oneself, within each single person, one finds many inconsistencies and contradictions. Sometimes the disparity between one's thoughts early and late in the day is so great that one spends all one's energy trying to figure out how it can be resolved. This can lead to headaches. So naturally, between two persons, between parents and children, betweens brothers and sisters, there are differences. Conflicts and disagreements are bound to happen. If so, then how do we deal with them? If we have confidence in our capacity for reconciliation then we will be able to deal with these situations.
I feel love and compassion are the moral fabric of world peace. Let me first define what I mean by compassion. When you have pity or compassion for a very poor person, you are showing sympathy because he or she is poor; your compassion is based on altruistic considerations. On the other hand love towards your wife, your husband, your children or a close friend is usually based on attachment. When your attachment changes, your kindness also changes; it may disappear. This is not true love. Real love is not based on attachment, but on altruism.
State of my sink: Ummmm....yeah, let's not go there.
Tuesday, March 04, 2008
52:14 The Cat Who Ate Danish Modern by Lilian Jackson Braun
The second book in the "Cat Who" series by Lilian Jackson Braun. Another light, easy mystery featuring Qwilleran and his cat KoKo and introducing YumYum. This time Qwilleran has been put on the decorating beat where theft, deceit, and murder follows him. Thanks to KoKo's catuition in pointing Qwilleran to the clues, he solves the crimes, KoKo gets a friend in YumYum and a his own press pass. I'm really enjoying the series for times when I want to just turn my brain off and enjoy.
52:13 Managers of Their Homes by Steve and Terri Maxwell
I read this book when I was pregnant with Nico and we were trying to get a good schedule going for homeschooling and adding a new baby to our lives. I spent a lot of time working on it but having the baby that refused to be scheduled, well, that kind of threw some big crimps into things. Now that he's 2 and into EVERYTHING and with all our various activities and therapies and such, I'm really feeling the need for a more clear schedule especially for scheduling Nico's time with big brothers and filling more of his time with activities to try and keep him from accomplishing his plans for world destruction and domination.
So I reread the book and am once again excited about trying to get us on a schedule. I know we need 2 different ones since we have morning activities MWF and afternoon activities TTh but that's ok. I'm starting to get things more organized in a few areas that will help kick the schedule off tho I admit things have been a little crazy since Matt broke his arm but I'm hoping to get the rest of us back doing some of our routines this week and hopefully can start working Matt back in next week as his healing progresses.
This is truly a fabulous book on how to make it all work to accomplish what NEEDS to be done, how to work in things you would like to do, how to say no to what won't work, how to deal with interruptions that are going to crop up, and a whole lot more. I'll be working in some of the FLYLady stuff with my schedule as well and my next read is Managers of Their Chores. I'm sure my children won't enjoy seeing me deeply absorbed in that book. LOL
So I reread the book and am once again excited about trying to get us on a schedule. I know we need 2 different ones since we have morning activities MWF and afternoon activities TTh but that's ok. I'm starting to get things more organized in a few areas that will help kick the schedule off tho I admit things have been a little crazy since Matt broke his arm but I'm hoping to get the rest of us back doing some of our routines this week and hopefully can start working Matt back in next week as his healing progresses.
This is truly a fabulous book on how to make it all work to accomplish what NEEDS to be done, how to work in things you would like to do, how to say no to what won't work, how to deal with interruptions that are going to crop up, and a whole lot more. I'll be working in some of the FLYLady stuff with my schedule as well and my next read is Managers of Their Chores. I'm sure my children won't enjoy seeing me deeply absorbed in that book. LOL
Monday, March 03, 2008
Shout Out!
So I keep hearing from people out of the blue that they have been keeping up with me via my blog but since many of these people don't leave messages I have no idea who all is reading my blatherings until they mention something so.... I'd love if you read this, to please leave a message under this post just because it would be nice to know who is reading my ramblings and rantings. If you aren't sure I'll remember you (and remember, I have had little sleep for 20mos now and even less over the last week so assume I won't LOL), please add something in to jog what few synapses I have left.
Thanks!
Oh...and just cause....here is a pic of Matthew in his sporty new red cast:
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Insight from the Dalai Lama:
There is no reason to give up hope, because we have this marvelous intelligence. Because of this intelligence we also have a certain positive potential.
State of my sink: It was shiny before dinner and I'm getting ready to go back in and shine it again. It wasn't super pretty over the weekend but first thing I did this morning was get it shining again. I hope FLYLady would be proud of me.
Thanks!
Oh...and just cause....here is a pic of Matthew in his sporty new red cast:
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Insight from the Dalai Lama:
There is no reason to give up hope, because we have this marvelous intelligence. Because of this intelligence we also have a certain positive potential.
State of my sink: It was shiny before dinner and I'm getting ready to go back in and shine it again. It wasn't super pretty over the weekend but first thing I did this morning was get it shining again. I hope FLYLady would be proud of me.
Can this day please be over?????
Please, please, pretty please!!!! My day started at 3:30a with Nico waking up and refusing to go back to sleep for close to 20min. He repeated this at 5a. I didn't get to sleep until around 12m and was up and moving by 6:30a this morning. Well, when I say moving, that is only by the loosest definition as it was sort of a slug-like crawl over to the tea kettle to start that, then over to start the laundry, then over to do the dishes while the tea steeped. I finally got all the kids up and moving by 8a, jumped through the shower and sat down to eat breakfast at 8:55a but at least everyone that needed to be out of the house by 9:15a was dressed and had either already eaten or was eating with me. Then the phone rang at 9a, about 6 bites into breakfast. I spent the next 10min on the phone with Ortho explaining the situation with Matthew to them and trying to figure out what could be done to make him more comfortable. I get told, they are going to check back and I tell them to call my cell since I would be with Jon and Nico at therapy.
I got 3 phone calls during therapy trying to figure out how they were going to handle things and finally got it settled on us coming in at 1:30p to get seen. This then had me calling MIL to ask her to watch the other three boys so I didn't have to chase Nico all over Ortho while trying to take care of Matthew. Of course, the timing of all this left me getting home at 11:30a and needing to leave at 12n. Don't be fooled for a second into thinking that I spent that 1/2hr doing sensible like eating. I was too busy dealing with canceling Matthew's activities for the week.
The next 4hrs are spent dropping off the boys with MIL, getting fast food lunch for Matt and I (4th FF meal in 5 days, *blech*), getting to Ortho, watching them take his cast off, seeing the bruise from the break and the head of the pin that is in his arm, watch him get recast (red this time), wait for xrays, wait for Dr to read xrays and release us, wait to get appointment for recheck in 5wks but gleefully get to cancel the appointment for later this week and the one for next, get other boys from MILs, find out that Nico slipped on the rocks surrounding her koi pond and tore a hole in the netting over it (she seemed a bit upset by this but I have to wonder why he was climbing on those rocks without her being right next to him to he wouldn't fall into the pond???), getting home and putting Nico to sleep.
Then I took a deep breath.
Then I helped Chris with his math, answered phone calls, took Jon and Chris to KSW, arranged to get Matthew's account there put on hold, did the grocery shopping, picked up the boys, and came home.
Then I got to call Kaiser and poison control because daddy left Matthew's tylenol with codeine down and Nico unscrewed the cap and we are pretty sure drank some. We literally had just barely turned our attention from him to dinner and back to him so we know he couldn't have gotten much but still. Ugh!!!! I still want to know what possessed that pharmacist to NOT put a childproof cap on that stuff I'll never know.
I'm going to go eat dinner now and pray that I'm done with Drs for a few days.
I got 3 phone calls during therapy trying to figure out how they were going to handle things and finally got it settled on us coming in at 1:30p to get seen. This then had me calling MIL to ask her to watch the other three boys so I didn't have to chase Nico all over Ortho while trying to take care of Matthew. Of course, the timing of all this left me getting home at 11:30a and needing to leave at 12n. Don't be fooled for a second into thinking that I spent that 1/2hr doing sensible like eating. I was too busy dealing with canceling Matthew's activities for the week.
The next 4hrs are spent dropping off the boys with MIL, getting fast food lunch for Matt and I (4th FF meal in 5 days, *blech*), getting to Ortho, watching them take his cast off, seeing the bruise from the break and the head of the pin that is in his arm, watch him get recast (red this time), wait for xrays, wait for Dr to read xrays and release us, wait to get appointment for recheck in 5wks but gleefully get to cancel the appointment for later this week and the one for next, get other boys from MILs, find out that Nico slipped on the rocks surrounding her koi pond and tore a hole in the netting over it (she seemed a bit upset by this but I have to wonder why he was climbing on those rocks without her being right next to him to he wouldn't fall into the pond???), getting home and putting Nico to sleep.
Then I took a deep breath.
Then I helped Chris with his math, answered phone calls, took Jon and Chris to KSW, arranged to get Matthew's account there put on hold, did the grocery shopping, picked up the boys, and came home.
Then I got to call Kaiser and poison control because daddy left Matthew's tylenol with codeine down and Nico unscrewed the cap and we are pretty sure drank some. We literally had just barely turned our attention from him to dinner and back to him so we know he couldn't have gotten much but still. Ugh!!!! I still want to know what possessed that pharmacist to NOT put a childproof cap on that stuff I'll never know.
I'm going to go eat dinner now and pray that I'm done with Drs for a few days.
Saturday, March 01, 2008
His Mattjesty
They ended up cutting up the back of the cast and a little on the top and spreading it a touch to allow more room for the swelling. His poor fingers looked like sausages tho thankfully the circulation was still good. He is on tylenol with codeine every 4hrs for the pain and at the 3hr mark starts asking when he can have more so they said I could alternate it with some advil to make him more comfortable and that we need to make sure to put ice over the cast for 20min every 4hrs to help with the swelling. ER sent a note to Ortho about our visit today so we'll probably hear from them and get in there early next week to get things checked out. He is continuing to be in good humor about the whole thing saying how lucky he was because he broke his left arm and not his right and that it was only a break and not anything worse and so on. We went to Costco after his appointment and since he was close to needing his meds and I hadn't brought them, we used a flatbed cart for him and he found one that someone had stuck the seat part of an office chair to so he rode in style on his throne. His new nickname is "His Mattjesty". Goes well with "His Nickness". LOL
I just don't want all the attention going to his head. His great-uncle happened to be up visiting this weekend and brought his a gallon of ice cream yesterday. Today a shipment of giant chocolate covered strawberries showed up from his great-grandparents and then my MIL came over with this wind chime thing. Plus he has everyone but Nico jumping up to do his bidding.
I just don't want all the attention going to his head. His great-uncle happened to be up visiting this weekend and brought his a gallon of ice cream yesterday. Today a shipment of giant chocolate covered strawberries showed up from his great-grandparents and then my MIL came over with this wind chime thing. Plus he has everyone but Nico jumping up to do his bidding.
Back to the ER
Well, the swelling has not gone down, the knuckles are darker, and the skin between the knuckles more pale so we are eating breakfast, packing some stuff to keep us occupied, and back to the ER to get the fit checked. Poor guy. The itching has already started too. Through it all tho, he has continued to amaze me with his wonderful attitude and good humor. He just heard he was going back to the ER and a minute later was coming in laughing to tell me how he had just managed to put on his own sock. He always finds joy in things, a smile in his heart, and a laugh in his soul.
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